Elara is a seasoned software engineer and tech writer, passionate about demystifying complex technologies and sharing actionable advice.
Despite all the proven progress of contemporary medicine, some people are drawn to alternative or “natural” remedies and approaches. A number of these are not dangerous. As one cancer specialist observed in the past year, people undergoing cancer treatment will frequently try meditation or vitamins too. When such a practice is in addition to, and not instead of, evidence-based treatment, this is usually not a concern. If it lessens distress, it can be beneficial.
But the explosion of online health influencers presents problems that authorities and regulators in many countries have yet to grasp. An investigation into one such organization providing membership and advice to expectant mothers has exposed numerous cases of third-trimester stillbirths or other severe injury involving mothers or birth attendants associated with it. While the entity is based in North Carolina, its influence is international.
“For whole populations, going through labour and birth without professional support is associated with higher levels of risk for mother and baby,” according to a expert of midwifery.
Giving birth without medical assistance, sometimes called free birth, is permitted in countries including the UK and US. The risks are poorly documented due to a absence of data. Childbirth can be a daunting experience, and high-quality care is far from guaranteed. In England, a alarming recently published report found a large majority of maternity units to be unsafe or in need of improvement.
Criticisms of medical systems and specific, persistent issues with maternity care are in many cases justified. A significant number of the women spoken to for the investigation had previously experienced traumatic births.
But while distrust of institutions may be rooted in experience, it has also become a breeding ground for other influencers seeking converts to their unorthodox methods and DIY philosophy. During the pandemic, a “wellness” industry supposedly focused on healthy living was implicated in disseminating falsehoods about vaccines and fuelling suspicion about government advice.
Concern is growing that such ideas are acquiring more general purchase. One paper given at a cancer conference focused on misinformation, which it said had “significantly deteriorated in the past decade”. This investigation shows that behind the facade of an rebellious sisterhood lies an operation that coaches women as social media influencers as well as birth attendants. The organization does not present itself to be a certified medical provider.
There is no turning the clock back to a time when doctors were assumed to know best. Vast quantities of scientific research are made available online and many people use these to beneficial effect. But there is also a need for safeguards from poor advice. It is well known that the automated systems used by tech companies reward more extreme content.
In the UK, necessary reforms to childbirth care cannot come soon enough. They must include the option of home birth and the availability of clear information to empower women in choosing their care. Policymakers and bodies such as the World Health Organization should also develop plans for the information ecosystem so that science-based healthcare is not compromised.
Elara is a seasoned software engineer and tech writer, passionate about demystifying complex technologies and sharing actionable advice.